{"id":3138,"date":"2026-06-17T15:30:15","date_gmt":"2026-06-17T13:30:15","guid":{"rendered":"https:\/\/moirefoundation.nl\/?page_id=3138"},"modified":"2026-06-17T15:33:21","modified_gmt":"2026-06-17T13:33:21","slug":"about-the-stichting","status":"publish","type":"page","link":"https:\/\/moirefoundation.nl\/en\/about-the-stichting\/","title":{"rendered":"About the foundation"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"3138\" class=\"elementor elementor-3138\">\n\t\t\t\t<div class=\"elementor-element elementor-element-0d4a6ed e-flex e-con-boxed e-con e-parent\" data-id=\"0d4a6ed\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-9bdece7 e-flex e-con-boxed e-con e-child\" data-id=\"9bdece7\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-685a87d page-title elementor-widget elementor-widget-heading\" data-id=\"685a87d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">About the foundation<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-948c99e main-container e-flex e-con-boxed e-con e-parent\" data-id=\"948c99e\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-2b44ad4 e-con-full e-flex e-con e-child\" data-id=\"2b44ad4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-00c22d1 elementor-widget elementor-widget-heading\" data-id=\"00c22d1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Establishment<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5c0fc70 elementor-widget elementor-widget-text-editor\" data-id=\"5c0fc70\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span lang=\"en-US\">The Moir\u00e9 Foundation was founded by the parents of a child with UGDH syndrome. Driven by their personal involvement, they are committed to developing an effective treatment for this condition. The board members also bring relevant professional expertise, which contributes to the careful and effective implementation of the foundation\u2019s objectives.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-27fafa6 elementor-widget elementor-widget-heading\" data-id=\"27fafa6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">The board<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-422ec8f e-con-full e-flex e-con e-child\" data-id=\"422ec8f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8900055 elementor-widget__width-initial elementor-widget elementor-widget-image\" data-id=\"8900055\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/moirefoundation.nl\/wp-content\/uploads\/2026\/05\/Mieke_groen-CED7CE_website-150x150.png\" class=\"attachment-thumbnail size-thumbnail wp-image-2696\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b041d76 elementor-widget elementor-widget-text-editor\" data-id=\"b041d76\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong><span lang=\"en-US\"><i>Dr. Mieke Huijbers, chair.<\/i><\/span><\/strong><\/p><p><span lang=\"en-US\">Mieke has a background in molecular biology and biochemistry and obtained her PhD through research on oxidoreductase enzymology. Through this work, she developed in-depth expertise in the relationship between enzyme structure and biochemical activity. After a postdoctoral position in biocatalysis, she currently works as a lecturer in molecular biology and biochemistry at Leiden University of Applied Sciences.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7d9fa0d e-con-full e-flex e-con e-child\" data-id=\"7d9fa0d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-42e3b65 elementor-widget__width-initial elementor-widget elementor-widget-image\" data-id=\"42e3b65\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/moirefoundation.nl\/wp-content\/uploads\/2026\/05\/Bas_groen-CED7CE_website-150x150.png\" class=\"attachment-thumbnail size-thumbnail wp-image-2695\" alt=\"Sebastiaan Akerboom\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2974f70 elementor-widget elementor-widget-text-editor\" data-id=\"2974f70\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong><span lang=\"en-US\"><i>Dr. Sebastiaan Akerboom, secretary.<\/i><\/span><\/strong><\/p><p><span lang=\"en-US\">Sebastiaan is an inorganic chemist with expertise in metal-organic compounds. After obtaining his PhD, he worked for nine years in the R&amp;D department of a multinational company, where he was involved in the planning and execution of research projects. He is currently engaged in research projects in the field of clean and sustainable energy.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-00848dc e-con-full e-flex e-con e-child\" data-id=\"00848dc\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1a324b7 elementor-widget__width-initial elementor-widget elementor-widget-image\" data-id=\"1a324b7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/moirefoundation.nl\/wp-content\/uploads\/2026\/05\/Jolijn_groen-CED7CE_website-150x150.png\" class=\"attachment-thumbnail size-thumbnail wp-image-2953\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b45df65 elementor-widget elementor-widget-text-editor\" data-id=\"b45df65\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong><span lang=\"en-US\"><i>Ing. Jolijn Kienjet-Ronken, treasurer.<\/i><\/span><\/strong><\/p><p><span lang=\"en-US\">Jolijn has a background in medical laboratory research and spent ten years studying genes involved in the development of various diseases, with the aim of developing new therapeutics. She later worked on the development of antibodies for applications in immunotherapy. She is currently a lecturer in the Biomedical Laboratory Science programme at Leiden University of Applied Sciences.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5765238 e-con-full e-flex e-con e-child\" data-id=\"5765238\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4dab1aa elementor-widget__width-initial elementor-widget elementor-widget-image\" data-id=\"4dab1aa\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/moirefoundation.nl\/wp-content\/uploads\/2026\/05\/Anna_groen-CED7CE_website-150x150.png\" class=\"attachment-thumbnail size-thumbnail wp-image-2954\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-acd0c09 elementor-widget elementor-widget-text-editor\" data-id=\"acd0c09\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong><span lang=\"en-US\"><i>Dr. Anna Bennis, board member.<\/i><\/span><\/strong><\/p><p><span lang=\"en-US\">Anna has a background in neuroscience and obtained her PhD through research on stem cell therapy for macular degeneration. In addition to her experience as a business developer, where she established strategic partnerships between academic neuroscience research and the pharmaceutical and biotech industries, she has been active in education for many years. She currently works as a lecturer in molecular biology and regenerative medicine at Leiden University of Applied Sciences.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-127d776 elementor-widget elementor-widget-text-editor\" data-id=\"127d776\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span lang=\"en-US\">The board members serve on a voluntary basis and are responsible for defining and implementing the foundation\u2019s policy.<\/span><\/p><p><span lang=\"en-US\">More information about the foundation\u2019s mission and objectives can be found on the dedicated page.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-61d9c20 elementor-widget elementor-widget-heading\" data-id=\"61d9c20\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Origin of the name \u2018Moir\u00e9 Foundation\u2019<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7b8472a elementor-widget elementor-widget-text-editor\" data-id=\"7b8472a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span lang=\"en-US\">The moir\u00e9 effect is a visual interference pattern that occurs when two regular patterns are overlaid with a slight difference in spacing or angle. This interference creates a new pattern, consisting of lines or circles that appear to move or shift relative to one another.<\/span><\/p><p><span lang=\"en-US\">In several ways, the moir\u00e9 effect is associated with this foundation:<\/span><\/p><ul><li><p><span lang=\"en-US\">Ivan was very young when he became fascinated by the black metal wire ceiling lamps in the living room. When looking at these lamps and moving your head, moir\u00e9 patterns become visible.<\/span><\/p><\/li><li><p><span lang=\"en-US\">The moir\u00e9 effect evokes associations with the disrupted patterns seen on an EEG in epilepsy, a key feature of UGDH syndrome.<\/span><\/p><\/li><li><p><span lang=\"en-US\">In patients with UGDH syndrome, the structure of the extracellular matrix in the brain is disrupted. This can also be seen as a disruption of a pattern.<\/span><\/p><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>About the foundation Establishment The Moir\u00e9 Foundation was founded by the parents of a child with UGDH syndrome. Driven by their personal involvement, they are committed to developing an effective treatment for this condition. The board members also bring relevant professional expertise, which contributes to the careful and effective implementation of the foundation\u2019s objectives. The [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"inline_featured_image":false,"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"unboxed","site-sidebar-style":"unboxed","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"enabled","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"_locale":"en_US","_original_post":"https:\/\/moirefoundation.nl\/?page_id=2202","footnotes":""},"class_list":["post-3138","page","type-page","status-publish","hentry","en-US"],"rttpg_featured_image_url":null,"rttpg_author":{"display_name":"Jannes","author_link":"https:\/\/moirefoundation.nl\/author\/jannes\/"},"rttpg_comment":0,"rttpg_category":null,"rttpg_excerpt":"About the foundation Establishment The Moir\u00e9 Foundation was founded by the parents of a child with UGDH syndrome. Driven by their personal involvement, they are committed to developing an effective treatment for this condition. The board members also bring relevant professional expertise, which contributes to the careful and effective implementation of the foundation\u2019s objectives. The&hellip;","_links":{"self":[{"href":"https:\/\/moirefoundation.nl\/wp-json\/wp\/v2\/pages\/3138","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/moirefoundation.nl\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/moirefoundation.nl\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/moirefoundation.nl\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/moirefoundation.nl\/wp-json\/wp\/v2\/comments?post=3138"}],"version-history":[{"count":4,"href":"https:\/\/moirefoundation.nl\/wp-json\/wp\/v2\/pages\/3138\/revisions"}],"predecessor-version":[{"id":3142,"href":"https:\/\/moirefoundation.nl\/wp-json\/wp\/v2\/pages\/3138\/revisions\/3142"}],"wp:attachment":[{"href":"https:\/\/moirefoundation.nl\/wp-json\/wp\/v2\/media?parent=3138"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}